Giving hope to help families of Children and Adults with Wolf Hirschhorn Syndrome...
Welcome to our website, we want to raise awareness of Kian, our 3 year old son who suffers with this syndrome, but we also want to raise awareness and project positivity to give hope to families in the same situation.
About us...
We are Craig and Madeline Henaghan and we are proud parents of Kian, he was born January 2007 at Rake Lane weighing 4lb 15oz. Small but perfect.
At the age of 10 months he was diagnosed with Wolf Hirschhorn Syndrome, this diagnosis was one that changed our lives forever.
We hope that by creating this website we can raise awareness for the WHST and also to other families with relatives living with this syndrome.
At the age of 10 months he was diagnosed with Wolf Hirschhorn Syndrome, this diagnosis was one that changed our lives forever.
We hope that by creating this website we can raise awareness for the WHST and also to other families with relatives living with this syndrome.